Lungs

[amandajane76]

Just had results of lung test.it show some reduction in one of measurements, sometimes associated with inflamation of lungs.it is said to be slight reduction but a ct has been requested.any advice please ? No idea what this means or why.i do get breathless when walking a little.worried

[Leecylou]

I'm going to guys next week to have a lung function test what did it involve. I have days where even walking to the bathroom leaves me breathless. They've also called me back to see a cardiologist I've just spent four months seeing one (although I found him to be the most obnoxious man on earth) I've had pericarditis since November. Hope you don't have to wait too long x

[kittykat68]

Hi are u on methotrexate at all as that does cause breathlessness, I have emphazema, but I regulary get chest infections and pericarditis, try not to worry and hopefully ull be given the steriod pump, its a big helpx

[amandajane76 in reply to kittykat68]

Occasionally I get sharp pains when I breath but its not a regular thing.i am due to start methotrexate in near future.breathing test straightforward

[kittykat68]

I get chest pains on the right side but its never regluar, ive been on methotrexate coming up 5 years it really does help me with skin/pain x

[amandajane76]

So how is lung inflammation / involvement managed ?

[misty14 in reply to amandajane76]

Hiamandajane

Lung inflammation is treated with steroids and methotrexate so it's a good thing your being started on it soon. Good luck for your other tests.X

[amandajane76 in reply to misty14]

I ve been on steroids for years thought.honestly thought once I was on methotrexate steroids would be reduced

[Maureenpearl]

I have Mixed Connective Tissue Disorder with lung involvement (Pulmonary Fibrosis). I was given Methotrexate and all the other drugs including Cyclphosphamide but my lung function did not improve and the damage just kept getting worst so now I use ambulatory oxygen which I had to ask for even when the doctors and nurses could see how much I was struggling to breath.

This winter I had three chest infections (which meant I had to pay a lot more for my travel insurance).

I now see a Rheumatologist and a pulmonary consultant in a combine clinic. My previous Rheumatologist tried to get the funding for the drug Rituximab as was suggested by the Pulmonary consultant but we were turned down several times.

I have now been given the funding and had the first infusion last Wednesday and will have the next one next Wednesday. I am also going for a lung function test tomorrow.

Hope this is of some help, all the best xxx