Hey, i got diagnosed with lupus a few months back, and im still learning about it. so was wondering if people could help me.
What someone to talk.: Hey, i got diagnosed with... - LUPUS UK
What someone to talk.
hey hun wots upx
Just looking for people to talk to who understand what's going on if you know what I mean
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Hi IcklePrincess92,
We have a free information pack that I would be happy to send to you. Just send me a private message or email paul@lupusuk.org.uk with your name and address.
We also have regional lupus support groups if you would like to meet with other people with lupus and we have telephone contacts if you would like to chat.
Please let me know if you would like any more information about these and I will do my best to help.
All of it sounds great thanks
OK, great.
If you want to send me a private message or email with your address then I will send you an info pack, let you know about your nearest support group and give you a contact telephone number for one of our volunteers who you can chat to.
Thank you i will send you an email now
Hi Paul I was diagnosed with SLE lupus, and will like to receive a free information package and meet and chat with other people with lupus. My address is... ***************************. Thank you,
Gladys Wilson.
Hey if you want to chat, you can message me if you'd like
Hi Gladysw,
I've edited your address from your comment as this is a public forum and I thought it best to protect your sensitive information.
Unfortunately we are not able to post our information packs overseas because it is too expensive for us. You can however download a digital copy from our website at lupusuk.org.uk/want-to-know...
Also, I cannot provide you with details of support groups or contacts in your area because we are a UK charity and I don't have the information available - sorry. Have you tried contacting the Lupus Foundation of America to find out what is available in your area?
Hi IcklePrincess92,
Where to start? How are you doing and coping so far since you've been diagnosed?
I'm coping as well as can be, but struggling cause can't really talk to anyone about how I'm feeling
![Lil-Miss profile image](https://images.hu-production.be/avatars/27fbbead1f291333f83bad1f31359fe3_small@2x_100x100.jpg)
People on here are very friendly and always willing to offer advice. Remember you are not alone. Try see if you can attend one of the groups to speak to someone.
I think one of the best things to do is just start to scroll through the posts - that will really help you learn, and you'll be able to pick out things that are relevant to youself. And then ask questions! Folk on here are REALLY helpful!
Thank you, think I will
Hi! I think the first couple of months are horrendous after the diagnosis. I think everyone deals with it differently. I was diagnosed in November 2013, so 17 months ago now. I joined Lupus UK to get their magazines and I bought 4-5 books to read. I wanted to know everything I possibly could about what I was dealing with. I also wrote a blog for this site about those first months. That was quite therapeutic. Luckily my medication slowly worked and now although I have symptoms every day, I am able to live a relatively normal life. I know I am lucky, my lupus is mild. I know also that it might not always be that way. I would say keep a record of your symptoms and how you feel, as it's impossible to remember months down the line at hospital appointments etc. Be pro active in your medical care. And anything you are unsure of, ask here. You aren't alone. And people are happy to reply and share their experiences and knowledge. They are a very kind bunch of people. Finally, I have learnt not to push myself and not feel guilty about resting. I put myself first sometimes. I wish you well.
Thank you reading this helped