Got a diagnosis finally.

[reeneroo]

Just back from the rheumatologist and I've been diagnosed with Fibromyalgia could anyone with the same as me please give me some advice I'd really appreciate it thank you xxx

[Wendy39]

Hello. Were you happy with the appointment and do you feel this is the right diagnosis? My sister and a friend of mine have fibromyalgia and I know that exercise and physio is very important. I hope you can now concentrate on your treatment plan. Best wishes, Wendy

[kyliesinead]

Hi there. I was diagnosed with fibromyalgia by my rheumatologist and chronic fatigue syndrome by my GP. That was about a year ago. Since then I've developed vasculitis so my rheumatologist now says she is happy to call my condition UCTD. I think that the pathway to diagnosis is not always smooth and straightforward. Whatever the name, it seems the treatment is similar so I have stopped trying to justify my illness with a name. It's frustrating but as long as you can deal with it, that's all that matters.

[kitkat74]

Hi reeneroo,

I'm sorry to hear you have this too. You didn't say if your rheumatologist gave you any meds. I take nortriptyline for mine and paracetamol when really bad. There is à great site called fibromyalgia UK which will send you out a booklet and leaflet explaining the condition.

However, there are people on this fantastic site that have fibromyalgia too. The best thing I can say to you is to make sure you rest as much as possible, keep yourself warm (heat and warm showers) are my best friends. It won't take away your pain but eases it. Especially now the weather is changing you may feel extra sensitive to cold, heat and touch so be sure to invest in some thermals. I wear mine in the summer too because I get so cold.!!! Easier said than done keep your stress levels to a minimum and don't overdo things.

I won't lie to you but it's horrible illness and you will get people not believing you doctors included but as symptoms progress keep a note of all things that happen to you no matter how small. But on a plus point as with most things not everyone has the same symptoms!!!! I'm here if you have anymore questions but really find out as much as you can and learn what's best for you.

Sending you a gentle hug

kitkat74 xx

[ljohnstoniron]

If you were diagnosed to have fibromyalgia and the doctor did not rule out hemochromatosis (iron overload), then you have been going to the wrong doctor. Fibro and hemochromatosis overlap like the feathers on a bird. Get a copy of your lab results and see it an iron panel (serum iron, ferritin, and % saturation of your transferrin) was done. A person can be treated for so called fibromyalgia symptoms forever and if you have hemochromatosis, you will never get any better, only worse and maybe some very serious things that can lead you to anything including the bad one. I know for I have been down that road and it ain't funny. Check your MCV (mean cell volume) from your CBC (complete blood count) and if it is above 97, take note of this also. I wish the very best to you and I hope this doesn't lead you astray. You might take a look at my web site at ibs-hemochromatosis-fibromy... to see where I am coming from. I have been living with this mess for almost 86 years and 35 years after diagnosis. Leslie Johnston, DVM

[Shadows-walker]

Hi I have multiskelortor conective tissue deaseas and fibro ,I go on the H U fibro site it's brilliant will give you all the help and support you require it's a wonderful site.

As far as fibro goes don't stress if you can help ,and rest and keep warm have they tested you for raynaulds as well ? Take care Chris