Does anyone ever get a burning like sensation in their joints? It's hard to describe but seems to come as part of a flare up.

[Sianied]

[misty14]

Hi Sianied

I guess the burning sensation is the inflammation causing the flare. I can have it too, can you increase your medication dose to help it?. Hope you feel better soonX

[willowwag]

Hi sianed, yes i can confirm i also get this live with it every day where my joint feel like they are burning, my knees and hands and feet its a weired feeling like if your bone joint are really hot inside, this is inflamation in my joints causing it. With my lupus...are you on medication x

[lol-lou]

Hiya, sounds a bit likea fibro flare up. Do you have any other symptoms?

[notoverthehill]

Its the worst thing when having a flare.I have at times wanted my hands and legs cut off to stop the pain and the heat. Fortunately I have been having Retuximab infusions which have stopped the horrendous pain and heat.I am told by my rheumatologist that its killing the ra and osteo pain .I would certainly recommend this treatment if you are offered it. I still have vascular problems but can cope with it as long as the heat/pain goes.Still have hair loss but this time its falling out not being pulled out when in pain.

this is the worst disease in the world

[Sianied]

Thanks everyone! This is a new symptom for me, I have had mctd for 4 years and my usual flare up includes, swollen fingers, inflamed and achy joints, fever and general fatigue. But this last week I have had this burning heat in my hips and shoulders. Is fibromyalgia a symptom of mctd or an additional issue? Although I suppose it's all inflammation of some sort!! I am in hydroxychloriquine but they want me on methotrexate, I hope this will help? Xxx

[Hidden]

Hi sianied, I'm afraid it 'goes with the territory'. I have lupus and the burning sensation is quite frequent with my joint pains. Good luck with the metho, if you decide to take it.

[littlemissp]

Hi Sianied

I have had lupus for over 10years now and tend to know when a flare is coming as I start to get a burning sensation mainly in my shoulders. Don't know the answer to why I get it but part of lupus I suppose and I just have to live with it. I am on chloroquine 250mg and hope the new meds work for you.

[booohooo in reply to littlemissp]

Wats lupus cos I get burning sensation in m y leg often and numbness cud cut my leg off ive got fibro chronic fatigue etc etc booohooo x