Hi everyone does anybody feel like me (being held together by steroids)?

[Alan55]

[Tigerlily4]

Yes, indeedy, Alan but the alternative doesn't bear thinking about!

[Alan55]

Thanks tigerlily4 glad I am not on my own on this one

[Tigerlily4 in reply to Alan55]

In here, you will never be alone

[Alan55 in reply to Tigerlily4]

Thanks tigerlily4 such a great friendly forum where you can get good information and help when things get on top of you take care Alan

[Hidden]

I definitely am Alan. Strong meds have been stopped, re liver issues, and am on pred and depo jabs. Was due another jab last month, but can't bear the weight gain, and only had relief for 8 days last time. Am really suffering big time and need help but with a holiday and family wedding looming, I just don't want to get even bigger. Been in bed all afternoon, and not getting better, so looks like I will have to trot off to the Docs for another jab.

[Alan55]

Thanks 6161 hope you feel better soon I am quite lucky weight wise I have just had a flare and am on 30mg prednisolone a day but seem to be losing weight due to my body using so much energy to rebuild itself

[misty14]

Hi Alan 55

I too am held together by steroids. They are a necessary evil for this illness sadly , wish they didn't have such nasty side effects!. Hope you can reduce your high dose soon.

[tashi]

Hi Alan55 yes same here. As said by misty14 a very necessary evil. My last flareup started in November, still trying to get it under control, steroid doses going up and down but not able to come off them. It was a very high risk situation and without the steroids could have had dire consequences. Don't like taking them, they've started to affect bone in my upper spine (had DEXA scan), weight has gone up, and prone to swollen legs but the alternative doesn't appeal lol

[behappy1]

Oh yes. But now I'm steroid dependent. Wish I'd never had them in the first place . 4 years on, 2.5 stone heavier, osteopenia, thinning skin and wasting muscles. Wish I'd known the risks