I saw my consultant this week and it was agreed that I'd come off myco as I didn't feel I was benefitting from being on it - in last 3 months I've had problems with ankles/tendons/toes/feet causing so much pain it's been agonising to walk - all since being on myco. Also have 'neuropathic' pain in lung area and costochondroitis pain in rib!
Rheumy said to stop myco without weaning down and that it would not cause a problem to do so - huh! - apart from the raging headache that's centred on my forehead and driving me mad.
Sorry to whinge but it really is a pain in the head!