I was just diagonsed with Lupus this passed Monda... - LUPUS UK
I was just diagonsed with Lupus this passed Monday. I wanted to know can Lupus give you blood clots in your legs or lungs?
Hi Sette,
Lupus doesn't necessarily cause blood clots but can quite often be associated with a condition called Hughes Syndrome (sticky blood disorder) which can cause clotting of the blood. Are you experiencing clotting? Have you been tested for Hughes Syndrome at all?
I can offer you an information pack which contains some useful leaflets and booklets on lupus which is ideal for newly diagnosed people such as yourself, if you wanted to look into Hughes syndrome a little more they have a fantastic website you could visit too.
I have attached the link to the website for the Hughes Syndrome Foundation as well as our factsheet on lupus and blood disorders for you, if you require anything else please do let me know.
lupusuk.org.uk/images/pdf/8...
Best Wishes,
Hayley
LUPUS UK
Hi there Lupus in itself doesn't cause any blood clots however as mentioned before, with lupus some of us patients have what's called Hughes syndrome or antiphospholipid syndrome as its known and this is where the patient has sticky blood which Is prone to clotting and is treated with a suitable anticoagulant like aspirin, warfarin, heparin etc. For myself I take aspirin and it helps, also more movement in the body makes the blood reach to places like your legs so therefore there is not a high risk if you feel you have the disorder or are experiencing clotting you can get tested for it most of us get tested when we are diagnosed with lupus but there's no harm in asking if you haven't already been
GOOD LUCK
Afia
I agree with the two posts above regarding ASP. However, note that even without APS lupus speeds up plaque formation on arteries and increases cardiovascular risk - which means that cardiovascular events (strokes, heart attacks, etc) can occur with lupus sufferers. Which is why diet and exercise and keeping the lupus under control becomes even more critical.
There is a lot to take in at the moment - being newly diagnosed and reading so much online about what can go wrong, is frightening. But remember that not all these things happen to each of us and we can only do our best in managing it. Try not to panic but at the same time look at ways of improving the lifestyle to help slow down the disease progression.
Several times I have bee sent to A&E for blood test to make sure I haven't got blood clots in my lungs and each time it was because I had awful chest pains. I was told by my GP and the doctors at the hospital that because of the lupus I am more prone to blood clots.
According to the website
my.clevelandclinic.org/diso...
"blood clots are seen with increased frequency in lupus".
However, not everyone with lupus gets blood clots, and nit all blood clots are caused by lupus!
Is something to talk to your doctor about.
Hope this helps, and nice to hear from you.
Thank you for bringing up this question.
