I was recently diagnosed with SLE in early November 2011. However I have seen two consultants and one is not convinced that SLE is the right diagnosis as I am only hitting about 3 or 4 of the 11 criteria and my ANA is negative. Although C3 and 4 are extremely low. This particular consultant has asked for a skin biopsy as he thinks that my symptoms (painful burning whelts all over my body , swollen hands, fatigue, muscle stiffness, abdominal pain, dry mouth, weight lose to name a few) are pointing more towards Hypocomplementemic Urticarial Vasculitic Syndrome.
Has anybody else experienced this different diagnosis. I am at my wits end with the fatigue and swollen hands. The rash is driving me crazy and they have refused to give me any medication until they know what they are dealing with. My GP is of no help because he told me that he knows nothing about SLE or HUV! Things are just taking so long.
Any comments would be really appreciated as I feel in the dark and my positive thinking is fading fast.