Hi all!.Within the past year I've been experiencing fatigue, burning muscle and joint aches, skin rashes, hives, hair loss, weight loss, easy bruising, dry mouth, dry eyes, swollen glands etc
I recently had an ANA test which came back positive at 1:320 titre with homogenous and speckled pattern. My ENA assay was negative however. I am wondering if ENA needs to be positive in order for the possibility of Lupus to be considered? Or are other factors also considered? Since I am symptomatic (badly) and have other autoimmune history (IBD)... I want to be assessed with full fairness at my upcoming Rheumatology appointment.
Oh and my Mean Platelet Volume was slightly low!
I would love your thoughts/ advice on possible further tests/steps and the diagnostic criteria and process in general.
Hi Rose. I am not at my laptop until later. I will reply then.Quick answer: all blood tests can be “normal” & you can have SLE. Similarly, there are healthy adults with a positive ANA. There are lupus variant conditions too.
You need a SLE specialist. Not all rheumatologists treat or even see lupus patients!
Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked, Rose.
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You might find this article useful:
St Thomas' Hospital's "Alternative Criteria" by Dr Graham RV Hughes - THE expert on SLE!
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