So worried about eye sight

[littlemissp]

Hi all

I have posted before regarding problems i have experienced with medication and side affects. I have retinopathy caused by chloroquine that I was taking for 13 years. I am running out of options for meds that I can take. I am now on methotrexate but not only is my hair falling out but my eye sight seems to be getting more and more blurred. I am so worried that it is going to get so bad that I will not be able to carry out my job etc. I don’t know whether the predisolone or the methotrexate have made things worse or it’s just a coincidence . I have tried to call my rheumy but he has not returned my call. I don’t know where to go for help or advise

[lupus-support1 Administrator]

I am very sorry to read this & I understand how frightened you may be.

I would continue to phone your rheumatologist, several times a day.

I would also see your GP asap & ask for an urgent appointment to see an ophthalmologist.

Do let me know how you get on.

With good wishes,

Ros

[miccika1]

I would go to ophthalmologist asap

[milkwoman]

Do you not have an ophthalmologist monitoring your care? From day one of diagnosis, I was sent to an ophthalmologist for a full eye exam prior to starting Plaquenil to check my overall eye health and to get a baseline so that I could be monitored every six months just in case anything changes. Aside from a PVD in my right eye (common as we age and not related to medication), so far so good.

Please get an appt with an ophthalmologist to discuss the changes you are experiencing. You may also want to switch to a rheumy who is more responsive.

Good luck!

[lupus-support1 Administrator in reply to milkwoman]

That is exactly what should happen.