Having Problems Sleeping : I have Lupus... - LUpus Patients Un...

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Having Problems Sleeping

lesadiana profile image
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I have Lupus and I want to know does any one else have problems with sleeping at night. I haven't slept in 2 weeks. I have tried taking Melatonin but that does not work. Is there anyone that is having the same problem and did you find something to help you. If so can you give me so Recommendations I would so appreciate it because I'm so tired.

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lesadiana
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lupus-support1 profile image
lupus-support1Administrator

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

I am sorry to read about this problem.

“Your body produces melatonin naturally. It doesn’t make you sleep, but as melatonin levels rise in the evening it puts you into a state of quiet wakefulness that helps promote sleep,” explains Johns Hopkins sleep expert Luis F. Buenaver, Ph.D., C.B.S.M.

Melatonin is a hormone that regulates the sleep–wake cycle. It is primarily released by the pineal gland. As a supplement, it is often used for the short-term treatment of trouble sleeping such as from jet lag or shift work. Evidence of benefit, however, is unclear.

“Melatonin levels rise about two hours before bedtime,” Buenaver says. “Create optimal conditions for it to do its job by keeping the lights low before bed. Stop using your computer, smartphone or tablet—the blue and green light from these devices can neutralize melatonin’s effects. If you watch television, be sure you’re at least six feet away from the screen. Turn off bright overhead lights too.” Meanwhile you can help program your body to produce melatonin for sleep at the right time of day by getting exposure to daylight during the morning and afternoon. Take a walk outside or sit beside a sunny window.

“Be sure you’re also relaxing before bed, keeping the lights low and sleeping in a cool, dark, comfortable bedroom for optimal results.”

Buenaver says. Take 1 to 3 milligrams two hours before bedtime. “If melatonin for sleep isn’t helping after a week or two, stop using it,” says Buenaver. “And if your sleep problems continue, talk with your health care provider."

Source: hopkinsmedicine.org/health/...

It is important to know why you are having a problem. It might have nothing to do with SLE. If you suffering from chronic pain, for example, it is the pain that is the issue. Has anything happened that is causing you distress? Psychological distress, depression and/or anxiety are common in SLE.

My recommendation is for you to go to your doctor and try to find the reason.

LUpus Patients Understanding & Support (LUPUS) also have another website called the LuPUS Message Board where you can also post questions and talk to other people.

Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

Please use the following to complete the Date of Birth entry: nn-nn-nnnn where n=number. Thus, if your birthday is 5th May 1968, enter: 05-05-1968. Use the “-“ separator and not the “/“.

Finally, please go to: lupus-support.org/ and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

Cas70 profile image
Cas70

Hi - I had this problem until I bought CBD oil from HollandandBarrett (there are even better ones on line) buy the smallest bottle as a try out. Two drops under the tongue works for most people. I rarely need it now as just having it sitting by the bed reassures - often it is the fear of not sleeping that causes insomnia. Good luck

TM1970 profile image
TM1970

Omg this could be me, what meds are you on, and what age are you if you don’t mind me asking?

Terri

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