I'm curious ... how many of us get involved w/research of new treatments? It seems kind of a scary thing to do, especially when we are already dealing with an illness of unpredictability; how do you deal with the anxiety of what might happen?
Research: I'm curious ... how many of... - LUpus Patients Un...
Research
Written by
seejayd
To view profiles and participate in discussions please or .
1 Reply
•
lupus-support1Administrator
An interesting question. I cannot answer! There is a difference between trying a new drug; and clinical trials of a new design of treatment, such as a combination of drug regimes, or even using a drug, used in one medical treatment and using it for SLE ie a different protocol.
There are numerous papers published every month. For example, LUPUS: An International Journal is the major clinical journal, whose Editor is Dr Graham RV Hughes.
If you are thinking about new drugs . . . only one (Benylsta) has been produced in 20 years. This is because of lack of funding and no incentive for pharmaceutical companies.
With good wishes,
Ros
Not what you're looking for?
You may also like...
CNS Lupus & Noise Sensitivity
through my head when I'm having an episode. Does anyone else get this? I'd be so grateful if you...
Looking for new lupies for mutual support and understanding!
Hi there,
I'm Suzy, I'm 23 and I've had Lupus for 12 years, I was diagnosed when I was 11 and was...
I'm new to this, wondering if this is flare
everything! Arg. You guys know what I mean. I tried leaning on mom or kid and they think I'm...
Just diagnosed 12/24/15
of stones.But even when I'm not passing stones I have severe left flank pain,I'm assuming due to...
Don't understand Lupus results
before they said I had Lupus. I'm at a loss, they told me they don't know how to treat it back...