Hi there,
I'm Suzy, I'm 23 and I've had Lupus for 12 years, I was diagnosed when I was 11 and was in the last stage of kidney failure. I was diagnosed with CNS Lupus this year after years of symptoms. I also have Fibromyalgia, an underactive thyroid and a few other things. I'm having a massive flare at the moment and will be starting methotrexate next week after trying and failing with mycophenalate. I know it can be quite lonely sometimes dealing with the fatigue and pain and it would be lovely to chat to other people who understand! Please feel free to send me a message, I'd love to hear from you
Suzy x
Oh Suzie.... Bless us heart bab...!
I understand..... Though I class myself very lucky, as mine is mainly the skin.... Discoid/SCLE.... X
I find the hardest to deal with is the tiredness.... No one really understands.....' You have to fight it!...' I could scream!!
Just remember.... You are not alone chicken..... !! X
Xxxxx
Hi Sempa! Thank you so much for your lovely message
I know how you feel about the tiredness, it is horrendous. You know, my mind is so active and I have so many hopes when I wake up of the things I will accomplish in that day - but my body just seems to desert me sometimes, although it is all the time at the moment. It is so frustrating but I have to tell myself not to be so hard on myself! My Aunt has discoid lupus and it is quite distressing for her. She gets blisters in her nose and ears and her skin can be red and hot and sore. Her eyes also sting. It's a horrible thing! I feel for you, really I do.
Thank you for your kind words, I am so happy to have met you! You are also never alone
Sending hugs, Suzy xxxxx