I have not been on this wonderful forum for a long time. I had my personal and medical struggles and that prevented me from having energy to post here.
I hope everyone is allright or at least keeping strong!
I still have an UCTD diagnosis (since 2014) and my unknown collagen disease is getting worse. I got two newly discovered symptoms: blue sclera, see picture (is anyone familiar with this?) and slightly parrot beak nails on my thumbs, indexfingers and middle fingers. My GP just suggested to Google these symptoms.
Unfortunately I got diagnosed with severe endometriosis (DIE) in June 2017 and after long consideration and because of extensive adenomyosis I will get a major operation on March 2nd. I will get a hysterectomy and the endometriosis will be cut and burned away. Rationally I agree with the hysterectomy but becoming a mother is now very very far away 😢. My hubby and I look for a surrogate now.
So no good news but I am still hanging on and trying to be strong. Still able to work by have many sick days.
Please keep strong my fellow warriors 😘❤