New to this: I think it's great to have... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,421 members1,258 posts

New to this

1 Reply

I think it's great to have a site people with lupus can share experiences, offer advise and support. It can be a scary place lupus. And no one really understands the fears you have or the low days. The tiredness for me is the worse along with stiff joints, makes me feel really low. It affects yr whole world and at the same time I try and stay positive by telling myself it could be worse. But stay positive people. X

Read more about...
1 Reply
lupus-support1 profile image
lupus-support1Administrator

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked Hunte!

What you have written is very like many with SLE.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

You may also like...

New and Unsure about me

work. I had a positive ANA but the double strand was negative. My red blood cells are low, I am...

Looking for new lupies for mutual support and understanding!

and it would be lovely to chat to other people who understand! Please feel free to send me a...

I'm new to this, wondering if this is flare

So what triggered this? All of it? I think I can avoid most in future cept the sun. The bills...

I am new here. :-)

for eyesight to deteriorate very quickly, & why? I can not even get an appointment with a GP now -...

Does anyone have cutaneous lupus?

that does, lol! I really would love to talk to people who understand, and people that care. And of...