LUpus Patients Understanding and Support


I have had various symptoms for over a year now, headaches, chest pain, hair loss, stiffness, mouth ulcers, cold/flu like symptoms, ibs , low b12, fatigue to name a few, doc reffered me to rheumatologist as urgent with suspected conntective tissue disorder (my sister has lupus). Admitted to hospital at christmas with unexplained severe abdominal pain. Crp currently 21 and esr 29. Been to first appointment there n feel so disappointed. Was in and out in 10min, consultant skimmed the doctors refferal letter and said would do some more bloods n give me another appt for a few mths then probs diacharge me !. He just looked at my knuckles n said they look fine??..and advise appreciated. X

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Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

I am so very sorry you are so poorly. If you are in the UK, I recommend you return to your GP and ask fora referral to see Dr David D'Cruz at St Thomas' Hospital Lupus Clinic, London. A 10 minute appointment is unacceptable. A doctor cannot even perform a clinical examination.

I recommend, you write down every illness since childhood,no matter how unconnected you think they are. Include any mood disorders. List them in chronological order. I also suggest you keep a diary of symptoms.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!


Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

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