emptiness...: When my doctor says that... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,498 members1,294 posts

emptiness...

Empty_mind profile image
2 Replies

When my doctor says that I have Lupus, I feel like I'm lost and empty.. but hey LIFE GOES ON! ;)

Written by
Empty_mind profile image
Empty_mind
To view profiles and participate in discussions please or .
Read more about...
2 Replies
lupus-support1 profile image
lupus-support1Administrator

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

lupus-support1 profile image
lupus-support1Administrator

Harry, there is no cure. Doctors have not found a "cure"and it is unhelpful, if not cruel, to tell someone there is a cure.

However, over the last 50 years, there has been major developments. There is better diagnosis and better treatment. Many patients come off drugs all together. Patients can lead a normal life, get married, have children with the same life expectancy. This applies to the majority. It isn't all doom and gloom.

The most important factors are: have a lupus specialist as your doctor. You also need support, especially psychological support from your family and friends. Talking to a therapist is also helpful.

Not what you're looking for?

You may also like...

Don't understand Lupus results

I was diagnosed with Lupus, I have every symptom almost. That was about 8 years ago, then I...

I stopped taking my lupus medication, I feel fine, how do I tell my Rhematologist?

Hello, I was diagnosed with Lupus two years ago. When I was first diagnosed the only symptom I had...
ElenaCabrera profile image

How can these horrific pains be invisible

I feel like my ankles are broke too they only look different to me.My hands are so shaky I often...

Metformin / Glucophage & Lupus

Hello! I was thinking a long time ago when I was diagnosed with lupus, that the culprit had to be...
VEGD profile image

Covid vaccines and Lupus Flare - up

Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years...

Moderation team

lupus-support1 profile image
lupus-support1Administrator
fabwheelie profile image
fabwheelieModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.