When my doctor says that I have Lupus, I feel like I'm lost and empty.. but hey LIFE GOES ON!
emptiness...: When my doctor says that... - LUpus Patients Un...
emptiness...
Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.
We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.
By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.
When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".
Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.
I look forward to talking with you more!
Sometimes we need to talk to people who understand and who are not family or friends.
With good wishes!
Ros
Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.
Harry, there is no cure. Doctors have not found a "cure"and it is unhelpful, if not cruel, to tell someone there is a cure.
However, over the last 50 years, there has been major developments. There is better diagnosis and better treatment. Many patients come off drugs all together. Patients can lead a normal life, get married, have children with the same life expectancy. This applies to the majority. It isn't all doom and gloom.
The most important factors are: have a lupus specialist as your doctor. You also need support, especially psychological support from your family and friends. Talking to a therapist is also helpful.