Its four weeks since I saw my new rheumy and tomorrow I am back to put care plan in place with rheumy nurse.i have no idea what this will involve but was give info on types of immunosuppressants.i am already on prednisone and plequnil (have been for 14 years) I have no idea what's going on or what exactly they think is wrong.all bloods ok a part from low ferritin.i am convinced I have erythromyalgia as a secondary but this has not been confirmed.i am so nervous and after all these years want a clear idea of what I have.i am scared I will leave none the wiser
Hospital: Its four weeks since I saw my... - LUpus Patients Un...
Hospital
Written by
amandajane76
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
lupus-support1Administrator
I can understand your anxiety which is very understandable.
You mention that you saw your consultant 4 weeks ago. Did your consultant discuss with you a change in your medication? Medication can only be prescribed by your consultant. I gather you have been taking corticosteroids and Plaquenil (an antimalarial). Many patients are also given immunosuppressants which are also "steroid sparing", that is, using them can reduce the level of corticosteroids.
What you can do is to prepare in advance a list of questions which you can present to the nurse. If necessary, perhaps you can ask to speak with your consultant if you are still feeling worried?
I ope your meeting goes well.
With good wishes,
Ros
Not what you're looking for?
You may also like...
New and Unsure about me
inflammation, so I am at a loss as to what to think. He has told me that I have fibro and now the...
Does anyone have cutaneous lupus?
this, without systemic involvement, even though I was ANA positive, and have a lot of the other...
Just diagnosed 12/24/15
passing stones I have severe left flank pain,I'm assuming due to having lupus from what I've...
Don't understand Lupus results
was diagnosed with Lupus, I have every symptom almost. That was about 8 years ago, then I returned...
It feels like there sun is killing me
Ive had lupus for 18 years but just recently the sun has been severely affecting me. I mean I know I