Muscle twitching!?

[Leah2014]

Hi all, I was wondering if any of you have muscle twitching with their lupus? I know it's not a common symptom so obviously starting to worry its something else so if anyone could get back to me I'd really appreciate it! X

[Bellaflowe Volunteer]

Hi Leah,

Which muscles are worse or is it all over? I get it in my legs. I don't think you should be worried but definitely let your doctor know. If any symptoms change for me I always let

my doctor know, so even if it's nothing to worry about it's written on my notes.

Sending hugs to you. Suzy x

[lupus-support1 Administrator in reply to Bellaflowe]

Your quite right Suzy!

[lupus-support1 Administrator]

It is important to tell your doctor every symptom and let him/her decide whether this is related to lupus. You may find it helpful to write down and record, with dates, your symptoms so when you have an appointment, you can go through everything you need to talk about.

Can you say a bit more about this muscle twitching. For example, does this occur when you are resting? Are there any other symptoms with your muscles?

Be well!

Ros

[Bellaflowe Volunteer in reply to lupus-support1]

Completely agree with you, Ros. Leah, I keep a symptom diary. Because my memory is so bad, I write down anything that seems to have changed with my body, when it started and how long for. I was having horrendous nightmares for months and I thought nothing of it until my consultant asked me if I ever get nightmares. I didn't even know that vivid nightmares are a little known symptom of CNS Lupus. So now I write everything down. Even if you're short on time with young kids, keep a notepad and pen in your handbag to jot things down quickly.

I'm here if you ever need to talk. I've had lupus since 2002. Suzy x