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LUpus Patients Understanding and Support
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Stroke or Autoimmune

Hi all,

Has anyone else had stroke like symptoms with all normal bloods besides high Calcium?

I've been to the GP and she says it's nothing to worry about. I am also calling her once again today. But I'm curious if anyone else has had these symptoms?

Thanks so much and I hope you are as well as you possibly can be today πŸŒžπŸŒΌπŸŒ»πŸ§šβ€β™€οΈπŸ˜Š

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Hi Shhilo

πŸ˜ŠπŸŒΏπŸŒΈπŸ¦‹

I’m shocked no replies.

Yes...too much calcium can cause severe damage to kidneys heart brain and so many other complications. I googled it and there is a lot of good info in detail about this. It mostly is caused from your parathyroid glands.

It is something to be worried about. I would definitely see a Specialist about it. Better safe than sorry.

Luv ya. EJ

πŸ˜ŠπŸŒΏπŸŒΈπŸ¦‹πŸ™πŸ€—πŸ’—πŸ˜˜πŸ˜‡πŸ•Š

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Good Morning,

I hate going to the GP's I feel like a complainer.... But I did go and I've enquired about it and nothing came of it. I tried to make a telephone appointment and unfortunately spoke to a long term receptionist who makes you feel it will come out of her pocket if she helps, with the tone of her voice. She said the GP would get angry at her if she tried to make a telephone appointment for me next time she was in. I never go until it at the point of scaring me. I should have just dialed 999, but would it be just another problem that is 'YOUR FINE'

πŸŒžπŸŒ»πŸŒΌπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸ€—

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Sooo sorry sweetie.

Love and hugs xxx

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Recently asked to see about referral for Rheumatologist for totally different issue, Osteoarthritis becoming very problematic in knee. He's refused as he couldn't help me last time. He's never examined me! No one has ever examined it for Osteoarthritis, other than confirmation of xrays.

So I sit at home waiting to see how long before pain and inability of movement decides my fate. Because I'm afraid I have no more fight.

I hope you are in a better frame of mind than myself.

❀️

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Oh sweetie. I’m sorry about all the walls you are slammed against each time you go to seek help. I’ve been through that most of my life and it really stinks!!!

Is there anyway you go private for you knee s ??

Maybe a confirmation via that way with your documentation proving your diagnosis could be used in the NHS clinics.

In the meantime could you buy a knee support band to aid with the pain and mobility problems??

Bless your soul sweetie. I just prayed for you sweetie.

Sending you lots of hugs and love dear.

EJ πŸ€—β™₯οΈπŸ€—β™₯οΈπŸ€—β™₯️πŸ₯°πŸ₯°πŸ™

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I've been wearing supports for some time due to hEDS, which many will say that's why the osteo. But this started before I wore them, when I still ran my business and was extremely active. I finally gave into using a stick, supports etc. Well I'm not telling you anything new am I?

It is soul destroying.

Sorry, not a positive day.

I hope you are as well as You can be today!

❀️

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Oh sweetie I hear the pain in this reply. I’m so sorry you’re suffering. If I had a healing wand I would heal you in a heartbeat. Since I don’t and can’t the best I can do is pray. I just said a healing prayer πŸ™ for you sweetie. I hope you get some relief soon dear friend.

Gentle gentle hugs. Love you.

EJ. πŸ€—πŸ€—β™₯️β™₯️πŸ₯°πŸ₯°πŸ™πŸ™

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Thanks so much EJ,

I shall pray for you too!

❀️xx

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Thanks dear xxx

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I hope it's warm and it's a bright day! πŸŒžπŸŒ»πŸŒΌπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈ

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For you too sweetie. xxxπŸ€—β™₯️πŸ₯°πŸ™πŸŒΏπŸŒΈ

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Hi Shhilo

You should definitely see a doctor and ask for a referral to an endocrinologist.

High calcium has a long list of possible symptoms.

I'm surprised that the doctor/receptionist is so laid back about it - my advice is that if it happens again you call 999.

I have high calcium and am currently seeing an endocrinologist. One of my symptoms is palpitations - if I have a bad episode I just go to A & E or call 999.

Hope you get sorted soon.

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Thanks so much for the helpful information. I had a really tough weekend with it so you've made me feel like I'm not crazy! Thank You!

Funnily I saw an endocrinologist in the states about 20 yrs ago right before hypothyroidism was diagnosed. So this makes even more sense after reading high Calcium level issues.

Thanks again!

πŸ™πŸ™πŸ™πŸŒžπŸŒžπŸŒžπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸŒΌπŸ€—

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I've just reread your message and wanted to thank you once again!

This sent me down a different path of research. I didn't connect the dots with high Calcium and increased cholesterol levels before, nor write it, and I don't know why my GP hasn't either. I've even told her, everytime I take the Calcium/Vitamin D supplement they supply me, TIA symptoms. I stop taking supplement periodically, because I can't take the pain in my arm any more, and feel better. This has been shrugged off. I've seen another Dr before I knew or made the connections of Calcium and symptoms. They told me to see my normal Dr because she knew my case better. So I don't really know where to turn. I am either fobbed off feeling like a hypochondriac or totally refused to be seen by Rheumatologist, who may have to refer me to Endocrinologist. I've spoken to my GP before about an Endo and she had never HEARD of one??? Really?

Anyways, thanks again!

πŸ™πŸŒžπŸŒΌπŸŒ»πŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈ

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Hi Shhilo

I've just read your reply and looked into the high calcium/high cholesterol link. It seems this research is in the early stages. High calcium alone is able to cause TIA/Stroke. Are you taking vitamin D and Calcium or just vitamin D?

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Supplement is Thai Cal-D it's sublingual Calcium & Vitamin D.

Symptoms started with dull pain and feels comoressed, but can be a 9 on pain scale, in left arm first. Included right veiny area in foot but just the once. Numb left side of face and, slurred speech and disoriented thought pattern. (I was trying to make the daily fire and just couldn't figure out what to do, unnerving should have called 999 but again worried to make someone come out to say "your FINE") Moved to chest, now digestion, nausea, increase in muscle spasms. Muscle spasms are normal for me but these are every where in body throughout the day, above normal. Tiredness/fatigue, well aren't we all? But yes still a symptom.

From what I can read these follows symptoms of hypercalcemia and/or Hyperparathyroidism. Which would explain neck swelling on one side for about a year or so.

I'm fine with putting up with pain have done so since I was at least 5 yrs old. But....

I suppose I'm not really up for let's just wait and see, rather tired of leaving my fate to those who just shrug there shoulders and say "I don't know". Maybe ask someone else their opinion? Besides asking me what I think it is. A Dr who's now retired asked me what I wanted him to do about whatever problem it was at the time.??? I'm a designer/artist not medical profession.

I just had an MRI which they had to stop because they found through xrays that I have a 20mm metal spherical shaped object in area of tummy scar. This has been completely ignored. I've waited 2 months for a reply. So I guess I'm a bit put out with leaving my hands in the hands of others. What has come to duty & care of the patient?

Hmmmm???

Thank you for your time and effort! Apologies for the rant on.

πŸŒžπŸŒΌπŸŒ»πŸ§šβ€β™€οΈπŸ§šβ€β™€οΈπŸ§šβ€β™€οΈ

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Hi Shhilo

No worries about the rant - I feel the same!

I presume you have had low calcium at some stage and that's why you are on calcium and vitamin D supplement? Or is it some other reason.

What I cannot understand is why after having a blood test result with high calcium why the doctor has not taken the calcium off or at very least reduced the dose.

I'm not a doctor but from what you describe you appear to have symptoms of hypercalcemia - this may or may not be caused by a parathyroid problem but no doubt the calcium supplements are contributing to high calcium.

First thing I would suggest is to see your GP and have your supplements adjusted/removed.

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Hi Engo,

No not low Calcium, Osteoporosis. So from what I have read the extra Calcium in my blood is coming from my bones.

So how long is too long to feel like this? What does bone pain feel like? When I wake in the morning my body is in tremors, most of my legs and hands specifically. Muscle Relaxants help and I have them for spasms anyway so that's good. But that's not treating the cause.

Thanks again. πŸŒžπŸŒΌπŸŒ»πŸ§šβ€β™€οΈ

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Hi Shhilo

I can't believe this has not been picked up by a doctor.

As mentioned already I'm not a doctor so what I say needs to be checked out with a professional. I have done quite a bit of research on high calcium and it seems that you have not had the necessary checks before being put on calcium and vitamin D.

So you were diagnosed with Osteoporosis and prescribed calcium and vitamin D? At that stage you should have a blood tests for calcium and Parathyroid Hormone (PTH).

The high calcium in your blood presently is being caused by your medication and most likely also PTH. The PTH causes the bone pain as it strips calcium from your bones. You need to stop the medication straight away (in conjunction with communication with your doctor). Your symptoms should improve from there but you will continue to have bone pain if your PTH level is high.

You then need your calcium and PTH checking - you definitely need to see an endocrinologist or parathyroid specialist.

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Thanks so much Engo,

Hmmm so difficult because I've already reported all of this to GP. Rheumatologist refused to see me and I was told it's so important for me to continue Calium/D meds. I was very vitamin D deficienct before Osteoporosis was diagnosed. Supplements changed from Vitamin D to Calcium & VitD.

So if I don't take supplements I lose my VitD, which I can feel and is quite severe symptoms due to diet IBS issues.

Saw another GP who said I really need to see my own GP who knows what's going on. I don't think she does know, well I know she doesn't.

Rock & hard place

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What does bone pain feel like. I have joint pain, muscle, nerve and IBS pain. I'm guessing it's my legs that just hurt all the time. Night time is rough, luckily muscle relaxants and pain meds seem to help with sleep. My bed is like princess and the pea but with more supporting pillows under legs.

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Thanks so much for your help, I have researched this and have come to the same conclusion, but sometimes hearing someone else's thoughts gives you more confidence.

I hope your as well as you can be Engo 🌞

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