Hello

[sylviaweller_79]

Hello to all other new members like me it would be fab to hear from you, just to say hi, if you'd like to

[jmeerkat]

Hi, quite new to this website. I have SLE and have started taking Mycophenolate about 6 weeks ago with hydroxycloroquine, tramodol and depo-medrone injections every 2 months. Nice to get to know someone new. How are things going with you. Justine x

[Hidden in reply to jmeerkat]

Hi Justine. Sorry for the late reply. I haven't been on here very much as I've been quite off colour for a while. I've just been told I have to have a colonoscopy. How are things going with you at the moment?? Debs x

[Dawn1977]

Hi there, nice to 'meet' you!

I'm also fairly new to the site. I've been diagnosed with SLE for just coming up to a year, following tests for suspected RA. I'm taking hydroxychloroquine 400mg daily which had really helped with joint pain and fatigue, and I take asprin for sticky blood as I found I was getting very scatty, forgetful and confused (more so than usual!) which was starting to bother me!

On the whole, I think I'm pretty fortunate as my symptoms seem to be fairly well controlled, so life hasn't changed too much for me at the moment, other than having to get past the shock of discovering I have a life long condition.

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

Be well!

Ros

[Hidden]

Hi. I've just joined this site today. After 21 months my rheumatologist has told me that I have 'something from the Lupus family' but has written down Undifferentiated Connective Tissue Disease. She doesn't want to 'label' me.

I'm on 400mg of Hydroxychloroquine daily...amongst others like Acupan painkillers.

It's nice to have somewhere private to come and chat because I think even my family are sick of me being ill. I see the glazed look in their eyes when I try to explain how the pain is that day.

Understandable I suppose but hurtful just the same.

Anyway it's nice to 'meet' you all and I look forward to getting to know you better.

Debs xx

[sylviaweller_79 in reply to Hidden]

Hi. I know who you feel, my family got sick of me trying to explain my pains etc. So eventually I just stopped trying and didn't say anything about my pains or anything, I was suffering in silence. It's a shame I didn't know about this site or anything like it back then. I wasn't given any support or counselling. But everyone is here I guess for the same reason. So if you wanna chat or just a moan about something, just go for it I'll listen and help if I can, or I can't I'm sure someone else can. Hope you're having a good day xx

[Hidden]

Thank you sylviaweller_79.

Nice to meet you xx