My mother is 58, very fit and has excellent lung function tests. She has non-small cell squamous lung cancer stage 3b (t4,n2,m0).
The nhs (we are in the uk) were proposing chemo and normal radiation or just chemo to try to clear nodes and shrink tumour so the possibility of traditional surgery may then be an option. (Thats is what has been discussed with 2 consultants and we have a letter to prove that.)
So we went to see a clinical oncologist to see which route is best to go to try for surgery and was shocked and disgusted that we where told there is no chance of cure and surgery is very unlikely as theres not much chance of the 2 lynth nodes clearing (even if they did there are probably more we can't see) also radiation would be to much so we are only offering chemo but there is a 50/50 chance it won't work! Then possibly light radiations if that don't work!
I felt as if there was no hope!
We have decided to get a second opinion and also have an appointment to see a specialist in tomotheropy (private) but was also informed by this oncologist that no matter what treatment we seeked elsewhere it would only change my mothers outcome by weeks!
This is not the impression or information we have been told previous to this appointment. I felt they had decided to give up on my mum before they had even tried but we are ready to fight this! And considering how fit and young my mum is why not try everything!
They also keep referring to my mothers xray that was missed the year before as "hidden behind the heart" not missed! Its 10x7cm even i can see it! And after we asked for copies of the xrays we received 2 jpegs that had been lightened so it is not as clear (although you can still see it).
I find it very hard to trust these people!