A bit of research! Please help if you... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

5,952 members3,549 posts

A bit of research! Please help if you can

9 Replies

Calling all who are taking 'Iressa'!

I'm thinking of doing my own bit of 'simple' research on how well Iressa is working for us as there doesn't seem to be a 'national' data base.

What I want is for anyone taking Iressa to get in touch with the following info. I won't use your name I'm just looking at figures.

Here's the kind of thing I'm looking for: (this is me)

1/ diagnosed march 2011, Stage 4. T4, N1, MXa, . Inoperable.

2/ EGFR positive. Exon 19 deletion.

3/ started Iressa April 2011

4/ First scan (6 weeks after treatment started) showed 20% reduction in tumour size.

5/ Second scan @ 6 months. Showed complete tumour collapse, now immeasurable.

6/ third scan @ 12 months. As above. no change no progression.

7/ (awaiting 18 month scan)

You can up date me on scan etc as and when they happen. I'm hoping this may show us a pattern and hopefully some hope.

Look forward to hearing from you.

Lyn x

Read more about...
9 Replies
rainman31 profile image
rainman31

hi Lyn. Would love to take part will sort it out this week.

suesal123 profile image
suesal123

Hi Lyn,

Only too happy to help in getting a picture of how this drug works.

So my details:

1. Diagnosed July 2012 with NSCLC T3N3M0. Inoperable

2. EGFR positive (not sure what the other bit is)

3. Started Iressa July 2012

4. First scan last week, 3 months since starting on Iressa. Tumour has shrunk by just under 50%

5. Oncologist very happy with progress and few side effects - just a few spots and dry skin.

I'll keep you updated with my progress

Sue x

rainman31 profile image
rainman31

1. Diagnosed March 2012 NSCLC Adeno T2 N2 M1b. In operable

2. EGFR positive

3. Started Iressa April 2012

4. First scan @ 3months. Was told treatment working on tumour and lymph nodes, however debate because of activity (white bone) on spine. Oncologist thought it was indication that bone was healing.

5. Next scan this Friday, results in a weeks time.

mags03 profile image
mags03

Hi Lyn,

Very happy that you are doing this research,I am really interested and will help in any way I can. This is my latest update.

!. Diagnosed June 2011 NSCLC,adeno.(pleural effusion).

2.EGFR Mutation positive-not curable.

3.EXON 19

4.Started Iressa July 2011

5 Scan @ 6weeks after starting Iressa showed 60% reduction.

6.Subsequent scans showed no change.

7.Latest scan Oct.-no change.

rainman31 profile image
rainman31 in reply tomags03

hi Lyn

Latest scan, stable- no change.

Onwards and upwards

Joewarren profile image
Joewarren

Hi Lyn

diagnosed June 2012

EGFR positive

NSCLC adenocarcinoma of lung with pleural effusion non operable

CT scans 3 monthly

Scanned August 12 November 12 and March 13 no change in any of the scans but no progression either

side affects spots to face neck and abdomen, sores to scalp, occaisional nausea and fatigue

As an extra it may be of interest to ask people did they have any strange sensations or effects/pains before the obvious coughing or wheezing. 9 months prior to diagnosis I suffered with unexplained vertigo that subsided after about 3 months, to be replaced by intermittent right sided sinus pain particularly around the orbit of the eye and side of my nose, a symptom that has remained and my tumour is on the right side of my lung, Then all the more obvious lung related synptoms started after a further month i.e. coughing and wheezing. As a non smoking group it may be of interest to see if we can find any common earlier symptoms amongst us that may help with earlier diagnosis for others, because unfortunately as non smokers it is not at the forefront of anyones mind to get an X Ray done until our condition has advanced.

unica55 profile image
unica55

Hi Lyn, this is the second time that I try to reply to your message and I hope that you are still interested on researching about Iressa. (I'm not so good with medical terms, but I'll do my best to help you)

1) diagnosed with terminal cancer in November 2010 (cancer spread to the Lymphatic system and effected the nodules in the mediastinum area...after the first operation in 2008)

2) EGFR positive

3) Started with Iressa in January 2011

4) The first scan after about 3 months, showed a considerable reduction of the tumours

5) The second scan about sex months after showed very little of them to be seen, immeasurable.

6) The third scan showed no change.

7) After almost 2 years from the start of Iressa the scan has detected "new nodules sprouting up" I was devastated by the news, because I thought I was with the golden tablet, so on the mend or at list controllable! So I had 22 sessions of radiotherapy to try to eradicate them. The tablet was suspended until the treatment was finished and now I'm back to it as before. It's now 37 months since January 2011 and I keep positively happy and hopeful that all will be controllable. I have faith in my oncologist and all the team that looks after me.

I hope that you had good results and continue to feel wonderful.

Look forward to your news

Best wishes to you and

best regards

Franca xx

unica55 profile image
unica55

Hi Lyn, are you ok? Not heard anything from you from a long time and I'm just wondering how you are doing.

Look forward to hearing from you.

Best wishes

Franca xx

LorraineD profile image
LorraineDPartnerRoy Castle

Hello Franca

I think Lyn is fine but has not been on this siet for a while. She is has a blog which you can find by typing Lyn Barrington's blog into a search engine.

I hope you are doing well and continuing to cope with your treatment,

best wishes

Lorraine

on behalf of the Information & Support Team

Not what you're looking for?

You may also like...

Just a quick update

I have just had my latest scan results, much earlier than expected. My November scan showed...

Not the news I wanted to hear :((

Just returned from my oncology appointment, the one I have been waiting for to get the results of...

Not such good news today

Well today I have been told that the drug I am taking, Iressa, has stopped working and the tumour...
suesal123 profile image

This is a question for all Iressa users

I have been on Iressa for 7 months now with no change in size to my tumour, but most of the blogs I...
Joewarren profile image

Last chance saloon

My husband was diagnosed with nsclc in November 2018. He has since had chemotherapy and...
Spananf profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.