Clinic updates

[Mindini1964]

Hi all, thank you all for posting your stories, it makes me feel I'm not alone.I've had two clinic appointments one in April when my modules had grown 1mm and just been last week (July) and they have not grown this time, I'm so relieved, but am still on 3 monthly scans and will Start treatment when the time is right, not necessarily when it's starts to impact my health. I can breathe again for the next 3 months and keep my fingers crossed!! Stay well everyone and enjoy as much as you can xx❤️‍🩹

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello Mindini1964,

Thank you for posting your update. I am pleased that you have had positive news this time and wish you all the best. It's good that they will still monitor your progress with regular scans, that will give you some reassurance and by sharing your news, it may give some hope or cheer to others. Live your best life! If you need to reach out at any time then support is available:

Information and advice on our website at roycastle.org/

Our Ask the Nurse service is available on our free phone nurse led helpline number -0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600.

Or you can email ask the nurse at [e-mail]

Best wishes

The Roy Castle Support Team