Well we now have a positive diagnosis. NSC adenocarcinoma of the lung Stage IV. its advanced apparently but in the great scheme of this I don't really understand that. I apparently haven't had it that long but its advanced. I will learn as I go along.
I have had the fluid drained and the lung fixed back to stop the fluid filling up again. There is a node somewhere in the middle of the lung that might be the primary cancer. Its still early days yet, they are doing more, I think he said molecular tests on the part they took out for biopsy and I am now being referred onwards to the next stage which will be chemo. I think they are doing the extra tests so it helps decide what is the best way forward.
We didn't ask enough questions as I didn't really know what to ask plus his bit was re inflating the lung and draining it, the next stage is someone else's department. I now await the next piece of paper to the growing folder of everything I have so far collected.
I wish he had said it wasn't cancer but I know that was wishful thinking really, I am not unhappy to have a diagnosis and can at least research the name and ask other peoples knowledge of it.
They cannot operate and remove the lung because I think it is in the lining, therefore it has to be alternative therapies. They also picked up a glowing bit (from the pet ct scan) in my neck glands again perhaps I should have asked more. It could have travelled already but it could just be an infection. They tell you but they don't if you know what I mean. Beginning to waffle now so its time to go.
Thanks everyone for listening, keeps me sane.