Had 2 thirds of my right lung removed in June (followed by Chemo & Radiotherapy). Latest scan shows that the cancer is back along the "Cut" where the left the top part of my lung. Can't believe its back after only 6 months (and with all the chemo & Radiotherapy). They are saying its inoperable and i'll get more chemo and immunotherapy.
Anyone had anything similar? am angry that the surgeon for not taking out the whole lung
Dear Ian_ceeSo sorry to hear your lung cancer is back and it is understandable that you are angry.
I take it the consultant has explained why they removed part and not the whole of your lung away at the time, or your lung cancer nurse may be able to discuss this with you.
Hope your treatment starts soon, but can imagine this must be very frustrating for you 6 months on.
Hope you will hear from others in the forum to support you and truly sorry you have to go through this again so soon.
Our lung cancer information booklets can be found on this link, chemotherapy and Immunotherapy: roycastle.org/help-and-supp...
If you wish to discuss anything you can either email us back at lungcancerhelp@roycastle.com or call our free phone nurse led helpline number on 0800 358 7200
Kind regards
The Roy Castle Support Team
Sorry to read of your recurrence - and can understand you feel angry and upset. The 'gold standard' for lung surgery is to remove the affected lobe or lobes. Removing parts of the body that are not damaged would be classed as 'clinical harm' or negligence especially as it can impact the future impact on a patient's breathing. My dad had a major resection of his bowel in his mid 50s (colon) but within 6 months they said it had returned - although what I now understand is that maybe the margins hadn't been enough and it may have still been in his system. He had another major resection and we didn't think he'd see 60 - he will be 91 next month and had another resection in 2016 in another part of his bowel. I had left upper lobe removed in Dec 2010 and within about 18 months had some symptoms that caused concern that it may have recurred - but the bronchoscopy revealed inflammation around the site of the surgery. I understand that scarring/healing can cause some issues for patients but the whole point of surveillance is to keep any eye on what's developing. Many lung cancer patients are clinically ineligible for surgery but respond to chemotherapy and/or radiotherapy and in more recent years immunotherapy. Try and understand if you can that the surgeon did the best treatment on what was known and evident at the time and now you'll move onto an oncologist or even the one you had the first time as you move forward for other types of treatments. In the meantime, it will take time to come to terms with the recurrence so if you need support on this try the Roy Castle nurse led helpline or Macmillan to talk through further. good luck. roycastle.org/about-lung-ca...
Good luck 🤞
You must be in shock all over again, it’s devastating news for you.
Are they doing a biopsy to confirm it’s the cancer and not inflammation or scarring?
Why is it inoperable this time have they explained why?
I hope whatever treatment you get works xxx
I’ve been on Avastin since 2014 for an inoperable tumor. It’s kept my CA125 stable and CT Scan show no growth of the tumor. Good Luck! 🙏❤️
immunotherapy damaging kidneys 
Nineteen years and still here!
Tested positive for covid AGAIN
Any similar experiences out there
