Hi folks- yes I have nerve pain and I’m back to the gp today to get meds to help with the pain. I tried to stop the dihydrocideine but I’m afraid I couldn’t cope with the pain. Lung nurse and consultant talked about taking Amitriptyline for this pain. I’m fit to fly in 3 weeks for a holiday but want to get this under control before then. What experience do any of you have on drugs for this sort of pain? How long will I be on them and do they work. I’m struggling to sleep without an added sleeping tablet . Don’t want to end up dependent. Before all this I would only every take paracetamol in an emergency!!
Nerve pain after vats Lobectomy - The Roy Castle Lu...
The Roy Castle Lung Cancer Foundation
I took Gabapentin for excruciating nerve pain after vats lobectomy last year. Very effective although took a few days to build up the dose. Was on it for about a month or so as I recollect.
Sorry to hear about your nerve pain, both Gabapentin and Amitriptyline should help. With the Amitriptyline, it is not unusual to have some pain relief within a day or two and will hopefully help you sleep also.
Duration of nerve pain can vary from person to person, some don't have any, others around 50 days, some a little longer.
Perhaps give yourself until you return from your holiday and you can then have both your pain and medication reassessed.
Hope you have a great holiday and feel more comfortable soon.
All the best
The Roy Castle Support Team
0800 358 7200
Like you, I didn't take painkillers even for headaches prior to my lobectomy and couldn't have the morphine as I had a nasty reaction. I feared addiction and also didn't like the constipation the cocodamol had caused. I came off painkillers too soon - and a nurse at the walk in centre when I had to have the wound dressed and packed a month after surgery explained about the need to take two different families of painkiller to get pain under control . One a more fast acting one and one that needs to be in your bloodstream 24 hours a day so i was given diclofenac and a more general (think it was stronger than paracetamol) and that did the job. In Jun 2015 I had a trapped nerve in my elbow affecting my hand/arm and had surgery in the October to reposition it - I was prescribed amitryptaline for that - it comes in different strengths (and therefore different side effects) but was effective for the nerve pain. hope you enjoy your holiday and that your recovery improves soon.
It seems some suffer more pain than others. I had complication of air leak and ended up in hospital 2 weeks but I stopped all pain relief after 4 days. I did feel pain especially in my back but i used hot water bottle at night in a propped up position I layed on bottle. I done this in hospital and at home. I also done exercises every day even in hospital( what i could anyway). Sorry your having so much pain. Hope it will soon subside
Hi Alison, I can relate to what you are going through. I also had a left Lobectomy in April which left me with terrible nerve pain. I tried Amytriptaline but didn't help, now on Gabapentin. It has helped, but still having pain under my breast. I'm also going on holiday in a couple of weeks so praying it will improve. Hope you get something for the pain it's horrible, take care x
Hi Alison, I had a my lobectomy in January and I have only just stopped the DHC and just take paracetamol.
One thing I found really helped to get off the DHC was Capsaicin cream. You have to get from GP.
Hope you enjoy your holiday x