Hi Everyone and All!
I hope you are all keeping strong and positive!
I've posted here before with regards to my 77yr old mum who was diagnosed with NETS cancer October last year.
She was diagnosed with large cell Neuroendocrine cancer 1cm to her lung and 4cm to her liver.
After 2 cycles of both Etoposide and Carboplatin chemotherapy she was sent for an mri which showed that the tumours were shrinking.
Just to her recovery after each episode, a recovery from sepsis and other infections she is now waiting for her 4th cycle next Wednesday.
We were initially told that she would be put forward for 6 cycles but after her appointment this morning with her Oncologist, they have advised that the 4th will be her last one?
Apparently 4 cycles are as good as 6???
The oncologist said her latest scan ( 3 weeks ago) showed that their had been cancer lesions to her bone on her hip, spine and knee which has successfully been targeted by her chemotherapy and is showing signs of healing.
After her 4th chemotherapy cycle next Wednesday she is to be sent for a further scan to see if there has been any further reduction in the cancer.
If so they will stop at 4 cycles.
I raised the question that when my mum has finished her chemo next week would she then be given preventative treatment via oral medication or a trial medication to ward of any further cancer cells or to prevent the remaining from growing.
As I said she's had a hard time since October with the treatment and I wouldn't like her to go through this again.
The oncologist said that their wasn't any preventative treatment for this and that they will monitor her closely and if the cancer remains dormont then fine but if not they will look at alternative treatment.
I them raised the fact that we booked a cruise for July this year ( booked months before her diagnosis) and I would like to give my mum the best possible chance of being able to go on it.
The oncologist said unfortunately that's the problem with cancer they can only wait and see!
My cousin sent me an article that was in the times today which states due to cuts etc that tgey were reducing 6 cycles to 4?
So I will be bringing this up on our next visit in March.
Can anyone enlighten me on this?
Isn't their any preventative treatment for this cancer or trials being given?
Anyone with this type of cancer can you advise as to what happened when your chemotherapy ceased and what happened 're 'careful monitoring" or were you offered further treatment?
Thanks in advance x