Hi am stage IV adenocarcinoma diagnosed August 2014, been on afatinib 20 mg all this time.
Fortunately still here but the last 6 months have seen not a change in tumour size as per scans.
However last 6 months has seen fatigue, mixing up words, needing to walk with stick, balance issues.
According to checks all ok but as we all know we know our bodies better than anyone else..I am obviously concerned about spread but my oncologist does not seem worried. Have any other of you long term afatinib users found similar issues or have anything to add??
Please help as I am starting to feel that things are changing for the worse