The Roy Castle Lung Cancer Foundation

Can anyone help?

Good evening, I was wondering if anyone has had a similar experience to what we are going through at the moment? Back in Oct 2014 we were given the news that dad had lung cancer, with a growth in a neck node also, that he was too ill for treatment.. We were refered to palatine care and left to get on with it really. No more appointments only palative nurses to care for sores etc due to severe neuropathy.

Fast forward to beginning of May, gp suggested getting a second opinion, as dad was still in relatively good health with regards to lungs. (Diagnosis was never backed up with a biopsy)

Returned to oncologist after another scan as he felt he would be able to biopsy neck node. His opinion shocked us completely, he advised that actually he would be able to biopsy as there were no growths to biopsy. Not in the neck or the lungs. There was a small nodule but nothing he was concerned about. Refered to neurologist for perphiral neuropathy.

Fast forward to 3 weeks ago.. dad started having seizures. He was admitted to the local respiratory ward. They rescanned and he now has growths in other lung mirror imaging the original and one behind his eye and one at the base of the skull. None in neck node. He has lost his swallowing ability and his vocal chords are paralysed. Alongside the disabling neuropathy.

No biopsy on growths, too ill. Bone marrow, lumbar puncture blood and urine all inconclusive. The docs still think this is cancer related apart from the oncologist that has miraculously disappeared from the trust in the space of weeks. Not even visiting his patient.

Please if anyone has had similar experiences please could you share as I am at my wits end trying to work it all out!

2 Replies


I am sorry to hear you have had such a tough time caring for your dad. It seems that you haven't had the level of support that you might have expected. How are things going?

As you will be aware getting biopsy tissue can be difficult and has been affected by your dad's other health problems. Following his last scan are you getting better support and a plan for how to care for him?

Do let us know how you are doing, this is a lot to cope with. If we can help with any specific information call our Freephone helpline on 0333 323 7200 option 2.

best wishes


on behalf of the Information & Support team


Having similar experience with my father inlaws 80 yr old girlfriend .. Ugh .. But he brushing things off because she wants nothing no one helping her cause she is still able to do adl care walks no device good appetite but I know future


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