Thank you all for your support and help! It is greatly appreciated!!
The yucky oncologist changed his tune somewhat and I got some answers. I suspect some of this is because even with the O2 tank my level was 88; they changed and put me on their O2 from the wall and the level did not change. He said this is because the mega dose of rads harmed my lungs. I am on O2 24/7 and probably will be for the rest of my life.
Now he thinks I should see a cardiologist to check for heart damage.
He compared CT scans and said the two larger tumors are stable and have not grown - wonderful news!
I'm a little confused about this one, but the reason he gave for not answering my questions about genetic testing and such is because they do not do it unless you are at least Stage 3. If that is accurate, then why did the 2nd opinion oncologist know that the EGFR is positive??
The scan showed that I did not fracture my ribs - apparently there is damage to the nerves and since it has been for such a long time, gabapentin was prescribed - I started it today.
The real message I walked away with is that doing the mega dose of rads was a poor choice since it seems to have done so much damage - sort of makes me wonder if he was even aware of the extensive rads on both breasts...
At least this time he spent time and listened to me. My questions are not answered because I wasn't state 3 or 4, but at least he took me seriously this time!
I could not have done this without all of your support and help - THANK YOU