I have primary lymphoedema in both legs. I am a fit active 40 year old female with a managable condition having got the swelling under control. I have a family and work around 25 hours a week, so have a fairly balanced lifestyle. The worst moment for me is cooking in the evening which inevitably means standing for around 30 - 60 mins by which time I'm generally exhausted and then irritable with everyone. If I have a social engagement in the evening the following day I can barely function as I feel so very tired. I'm not overweight and walk at least 20 mins every day and thankfully don't have a job that involves standing. I'm interested to know if other active lymphoedema sufferers can honestly claim that the condition does cause some aspect of fatigue.
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