How do i get MLD on the NHS?: Hello, i've had lymphoedma... - LSN

LSN

5,776 members2,669 posts

How do i get MLD on the NHS?

trixabelle profile image
4 Replies

Hello, i've had lymphoedma in my right arm for thirteen years. I have been managing my condition wearing made to measure compression stockings. My husband has been to taught to apply the compression bandages once a week which really improves the size initially. I also have a private MLD therapist once a month to move the fluid using massage, one that is registered through LSN. This can be quite expensive as you can all imagine. My question is would this MLD be available on the NHS. My lympoedma is non cancer related by the way.

Would welcome any feedback

Thanks in advance

Written by
trixabelle profile image
trixabelle
To view profiles and participate in discussions please or .
Read more about...
4 Replies
LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

Hi trixabelle

This is a really difficult one as there is only research evidence to back up the use of MLD during complex decongestive therapy not as an on going treatment for the condition - we know that many people do find it extremely helpful but the fact that there is no evidence gives the NHS and the private health insurers

a get out I am afraid. The only individuals who are managing to access some MLD on the NHS seem to be those with mid line or head and neck oedema which is very hard to manage any other way. I am sure our colleagues in MLD uk will be able to advise on any other ways that you might be able to access care.

trixabelle profile image
trixabelle

Thank you for your prompt reply this information has been very helpful. This will save me time chasing false hopes.

I get mine weekly through the NHS but this is because mine was caused by radiotherapy so as a cancer patient I get mine through the local hospice. However I do have friends who are not cancer patients and have had treatment in other clinics but they usually have to travel. Clinics are few and far between. For example living in Warwickshire my friends have had to travel to Staffordshire a round trip of 20 miles. Would it be possible for your GP to refer you to a clinic?

djkeith profile image
djkeith

I receive my treatment on the NHS and I have primary lymphoedema in my left leg. You should go to your GP as some trusts are now funding treatment. I live in Essex and my MLD practioneer is so busy with referral work that she is having to get someone else in to help her as she cannot cope. It is worth going to your GP and asking.

Not what you're looking for?

You may also like...

MLD on NHS

With rugby player sized legs in a tiny frame, I was delighted when my MEP (yes - the one in...
veriterc profile image

MLD or not MLD that is the question?

So...had SLNB as part of BC surgery. Now got approx 13% swollen fingers, hand and forearm on my...
whisker5 profile image

Can fibrotic skin be broken down and reduced?

Hi, I have what's coming up to stg 2 lymphedema, with the hard (fibrotic) skin. I am working on...
Blade1 profile image

How long before you saw a difference with MLD?

Hi I just wondered how many sessions you had before you saw a difference with MLD, I have had two...
bobblehat profile image

ARE compression garments a con?

After 4 years of secondary lympheodema in my right leg, I am beginning to wonder the worth of...
Health1919 profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.