Is there a group like this in the United States?

[Tina3310]

Looking for support group like this one in the United States. Does anyone have any suggestions?

[Lynora]

There are several - here is a post I copied - you can also use he Search option in the right hand column - I put in ‘help in the USA’

Did you find this US site yet? lymphedemapeople.com/ There are many thousands of lymphoedema patients on the public Forums on the site - check them out - you may need to make a large pot of coffee as it could take some time!

There is also the National Lymphedema Network - lymphnet.org/patients - another brilliant source of help on your side of the Atlantic. There are two support groups listed for New York city as well as NY state. lymphnet.org/sites/custom-s...

(I lived in Northern Virginia in the early 90's - happy days - now permanently home in Bonnie Scotland!)

[NievesAzules in reply to Lynora]

Good suggestions. Most of the posts at Lymphedemapeople.com are pre-2013 and some of the other sites are not as dynamic as this one. But certainly if you are in the US getting involved with Lymphedema Treatment Act lymphedematreatmentact.org/ is important.

[Lynora]

lymphnet.org

lymphedemapeople.com

clt-lana.org

lymphedematreatmentact.org

There are a few US users on this forum but mainly UK residents, where the LSN is based.

[CCT67]

This is an identical type of forum to this one in the US which was set up by NLN

inspire.com/groups/national...

If you’re on Facebook there are some brilliant support groups there, such as Lymphie Strong Inspiration Group (it’s a huge group with mostly US members). Its is a closed group to ensure privacy from the wider public. All you need to do is request to join and answer the questions about your lymphoedema in order to ensure you’re not a bot)