After a double mastectomy and having, problems with both arms, I wear compression sleeves, I also have fluid on my left side in particular (chest, armpit) also now developed in the left side of my neck, and collar bone it does go up and down. ? Any advice in particular in how to cope with the neck swelling would be most helpful.
Lymphoedema post dmx In neck : After a double mastectomy... - LSN
Some GP’s might know of independent therapists, but many have to start with NHS providers, as they are unable to refer for private treatment.
mlduk.org.uk has a register of UK MLD practitioners.
Yes, Lymphoedema can develop in other areas adjacent to the originally affected area. Your clinic nurses clearly weren’t very experienced or knowledgeable! If they won’t do MLD in your neck then go private.
I have regular MLD with an independent therapist. It gives me huge relief in my neck and head which certainly can have Lymphoedema. Doing daily self drainage on affected areas also helps. To find a qualified therapist in your area look on