I'm back on this page.
I had joined a few LE pages on Facebook but they were all public which I did not like.
I hope that I can get and offer support here.
I'm back on this page.
I had joined a few LE pages on Facebook but they were all public which I did not like.
I hope that I can get and offer support here.
Hi daveman - there are a few US members here, but it’s predominately Brits, as the LSN is based in London. I’m sure everyone will be round to say HI 👋
Good luck with the surgery. I think there are good sites in the US. In the UK we have LSN and BLS in our corner xx
Hi Dave There are are a few brilliant LE groups on FB that are closed with strong admin screening for admittance. They have loads of US Lymphies including many who’ve had SAPL (and LVA and VLNT). I’ve seen Dr Chen mentioned but don’t recall if it was positive or negative. One of the best closed groups - as the name implies - is Lymphie Strong Inspiration Group
There is also ladies with lymphoedema etc., and is a closed site on f.b., but also guess they have men on there too. I always speak very highly of the LSN but this is where I come for advice that is 100% and trustworthy, not saying f,b is'nt but know I like the LSN much better for advice.
Wishing you health and happiness, and remember we are all in this together so will always be here for you.