Need assistance

[Hepsibar]

How do I start? I’ve got Lymphordema and lipoedema and were thigh length support stockings. The conditions fight each other while the stockings help Lymphordema the lipo hatesthe restriction. I’ve now being diagnosed with bronchectisis and diabetis 2., both effect my ability to exercise. I struggle with daily tasks, can I get help anywhere?

[GabbiD]

Hi there. I dont have an answer for you. Others will probably have a better knowlegde for your questions. I am a newbie to all of this but I also have Lipoedema as well as lymphedema. My socks were measured for me so I don't have pain with the restriction. I didnt do well with the standard compression socks because the band would cut into my legs. Maybe you could get measured for custom socks? As for not being able to exercise- maybe the others will have some suggestions, or your doctor can give suggestions. Best of luck to you!

[Hepsibar in reply to GabbiD]

Thanks for replying ...I’ve had made to measure stockings and they gather at back of knees by the end of the day......after 10 minutes of walking you legs ache or very painful but I persevere but now I get out of breathe as welll...

[Lynora]

Where are you - we may know someone who could help/advise.

[Hepsibar in reply to Lynora]

Based in merseyside

[Lynora in reply to Hepsibar]

Which clinic do you attend?

[Hepsibar in reply to Lynora]

The clinic nurses give me support and I’m seeing them again soon it’s just you get a lot more info on this site and people have same experiences so understand better

[Turtlespooch]

i cannot for the life of me get my doctor to understand this is a condition...country doctors just dont want to know or help

[Carolpa in reply to Turtlespooch]

don't generalise, most doctors don't understand. You need to get referred to a specialist for good sound advice and understanding

[valc18]

have you tried Lymphatic massage or drainage procedures? In Australia some of our occupational therapists are trained in this. If it is in your legs there are exercises you can do while lying down which can help too (e.g. leg cycling). Maybe try to cut down on fats & eat more leafy greens.

[Ldd1412]

I have both lipo and lympho. I am quite lucky that i have access to a lymphodema nurse. I wear juxta compression straps which are fully adjustable by yourself and work wonders. I have had them since november and no longer get sores and the swelling has greatly reduced. Only downside and the thermal lining socks which are great in winter, not so much in summer. The company that makes them have reps that travel the whole country so might be worth asking about.

[StellaM in reply to Ldd1412]

Hi ldd,what are juxta compression straps please,i havent heard of them before

[Ldd1412 in reply to StellaM]

They are velcro straps that wrap around your leg. This link shows you a picture. google.com/search?q=juxta+c...

They are fully adjustable and offer a great deal of support. I no longer need a walking stick since having these.

[StellaM in reply to Ldd1412]

Thanks ldd x they look so much easier to put on than stockings!

But are they very bulky under trousers?

How lovely you no longer need yr walking stick 👍🏻👍🏻👍🏻

[Ldd1412 in reply to StellaM]

Not too bulky but do need wide leg trousers. Im on the lager side anyway but not visible. They are comfortable.

[Lynora]

Where are you based?

[Ldd1412 in reply to Lynora]

Warrington in cheshire.

[Lynora in reply to Ldd1412]

Have sent a PM

[ahmedsawaby]

Hello

Lipoedema can affect lymphatic system by fatty tissue called lipolymphedema

Some studies suggest that treatment of lipoedema by liposuction could treat lymphedema also.

[StellaM]

HI hepsibar,i feel for you..i too have both lipo and lympho.

I didnt realise that stockings help lympho but go against lipo???? Is that correct?

I live in Merseyside too and have been seen twice ( only diagnosed last yr )

Once at the Royal Hospital but the lymph nurse there is retiring and not being replaced as far as i know..and once at the Marie Curie centre in Woolton

i have learnt a lot here and also online. I now feel i know a great deal more about my health probs than any of the medical staff ive seen! They are lovely but the help seems limited,not much offered apart from made to measure stockings and advice to moisturise legs and a leaflet to tell me how to massage legs.

Ive learnt a much more thorough method of massaging head,neck and body plus deep breathing and exercise and diet advice,by emailing a lymph specialist in America for help.XX

Sorry to hear you have extra health probs on top of lymphie probs..me too,different to yrs ..it can all feel a bit much cant it.

A good idea is browsing on here for inspiration and help!

sending hugs X

[Hepsibar in reply to StellaM]

Thanks feeling much better with all support I’ve got on line x