I had vulvar cancer and this was removed in November last year. They took the groin lymph nodes too to test for cancer. I had 6 in the left and 7 in the right groin. Thankfully I was given the all clear in December and the nodes were cancer free however.....4 months on and I am still having issues down below. I have a cavity at the top of the vagina ( where they took the lump from ) around the size of a £2 coin that keeps leaking fluid. It has tested positive as an infection but it just won’t go despite antibiotics. I am also very swollen in the pubic area and the left hand side of the vagina. The consultant says this swelling could be the infection but could also be genital lymphadema.
I went for an appt to the lymphadema clinic last week and they think it is lymphadema but as my consultant said, how can it be when I have a gaping hole that any fluid could leak from therefore reduce the swelling.
I got some Spanx as per advice of lymph clinic and wear them daily to see if helps
I am just so upset and confused about it all. I have been told that time will tell if it is lymphadema once they get the infection under control as in if the swelling reduces once infection goes then it’s not lymphadema. Just hoping and praying I don’t get it in my legs too. No signs at the mo.
Can I also say that I do hate myself sometimes for moaning about this as I know how lucky I am to still be here and know that someone with terminal cancer would wish they only had my issue so I do have a word with myself quite often to remind me how lucky I actually am
Any help or advice/thoughts would be appreciated.