I heard this gene therapy product was in stage 3 trials for primary lymphodema ages ago, and was given the OK for venous issues - has anyone heard anything at all about what happened and if anyone is using it/ can get it?
Collategene: I heard this gene therapy product was in... - LSN
Collategene
Written by
Emma1966
To view profiles and participate in discussions please or .
Read more about...
2 Replies
•
Hi Emma , Where do you live? This is a UK site but we also have a lot of other nationalities posting. What Hospital was undergoing the trial? There is no trial I'm aware for gene therapy and LE. The current trials in the US, Australia and UK (2018) are for Ubenimex which we hope will be a successful drug intervention for LE (not a gene therapy). I think Collategene may be used for venous issues?
Hi Emma. The trial is from a hospital in Japan. The results will be in 2019-2020. I am waiting. Best wishes from Spain.
Search in google for HGF hepatocyte growth factor. Hope is near
Not what you're looking for?
You may also like...
Pain with Lymphoedema
Does anyone else’s medical professional tell you that lymphoedema isn’t painful? I have had 3...
so fed up with all this !
Hi
I have idiopathic secondary lymphedema in both lower legs.
The problem is ongoing infections...
KNEE SURGERY
Hello all, just had a call from my Hospital informing me that my total knee replacement surgery is...
Loss of service
Since being diagnosed with lymphoedema early this year as a result of surgery/trauma I have been...
Free day...
I'm just wondering if it's OK to leave my compression socks off for just 1 day? I had terrible...