Collategene: I heard this gene therapy product was in... - LSN

LSN

5,704 members2,635 posts

Collategene

Emma1966 profile image
2 Replies

I heard this gene therapy product was in stage 3 trials for primary lymphodema ages ago, and was given the OK for venous issues - has anyone heard anything at all about what happened and if anyone is using it/ can get it?

Written by
Emma1966 profile image
Emma1966
To view profiles and participate in discussions please or .
Read more about...
2 Replies
CCT67 profile image
CCT67

Hi Emma , Where do you live? This is a UK site but we also have a lot of other nationalities posting. What Hospital was undergoing the trial? There is no trial I'm aware for gene therapy and LE. The current trials in the US, Australia and UK (2018) are for Ubenimex which we hope will be a successful drug intervention for LE (not a gene therapy). I think Collategene may be used for venous issues?

jjgg191919 profile image
jjgg191919

Hi Emma. The trial is from a hospital in Japan. The results will be in 2019-2020. I am waiting. Best wishes from Spain.

Search in google for HGF hepatocyte growth factor. Hope is near

You may also like...

Any good advice for lymphedema?

never heard before I'm trying to learn to live with it but it's hard and not knowing anyone that...

Newborn with lymphoedema

like? What can we expect? I believe they will have to use an anaesthetic? Has any of you ever heard...

I CANNOT EXERCISE WITH MY LYMPHOEDEMA

knee replacement so if anyone has any suggestions I'd be grateful. Also I've heard that they wont...

Lymphedema swelling of hand from wearing sleeve and glove?

glove off my hand goes down. Have anybody heard of anything like this?

Support for lymphoedaema

but it is costing more than I can afford. Reduction in swelling about 10%, so it is effective, but...