Lva surgery results

[wfaw]

Please can anyone advise me on the effect of lva if it does not work?

Before I think about​ seeing if I am a candidate for it I really would like to now of anyone who the operation and has not worked for them many Thanks

[CCT67]

I was assessed in Oxford by professor Furniss and Mr Ramsden as not being unsuitable for LVA as I have Primary LE (both legs) that they informed me after completing ICG Lymphology scan, that my legs are absent of lymph vessels and lymph valves. Lymph vessels are required for LVA - the surgery consists of attaching lymph vessels with blood vessels. They advised most lymphies with Primary are not surgery candidates however outcomes for Secondary LE patients are very good (in a 3 year post op study available on line)

Before and since being assessed for LVA, I had spoken to and read a number (about 50) anecdotal accounts from people in the US, UK and Europe who'd had LVA. (In addition to this site I'm in a number of web-based LE patient support groups where many people who've had LVA, SAPL and lymph node transplant are members and post about their ops). All of those who've posted following LVA report improvement, some more than others, but all report their LE limb has reduced in size and/or doesn't have the same level of oedema or as unpleasant symptoms as they were having before the op. They all reoort their quality of life has notably improved. compression garments are still a must after the op - LVA surgery sadly doesn't negate the need for ongoing compression.

The likelihood of your own LVA outcomes is something to discuss with the surgeon. I paid £650 to meet with Professor Furniss and his 2 colleagues in Oxford and to have him undertake the ICG Lymphography scan of my legs. Although I was gutted when he told it was impossible for them to do LVA on my legs, the consult and assessment of my legs was absolutely worth £650 it cost me. All the best x

[wfaw in reply to CCT67]

thank you i might go and speak to them, i just was concerned about side effects of the surgery , like my arm getting bigger.

That would be not good news, it is bad enough now.

thanks again for all the info that people are kind enough to share. x