Hi I've just received my letter from the clinic I have been referred to and they have refused me because I don't live in the borough. I have been informed that there are no clinics in Hertfordshire does anyone know any different? Thank you
Clinics in Hertfordshire: Hi I've just received my... - LSN
Clinics in Hertfordshire
I was under the impress that we can choose the clinic we want to receive treatment?
If you research on the MLD website you should be able to at least find a private therapist mlduk.org.uk/therapists/ it is very frustrating for you and many others across the country, that there is not enough support in the UK. NNE
The Lymphoedema Support Network has details of lymphoedema clinics. lymphoedema.org . Telephone 020 7351 0990.
I went to my GP (after about 15 years or more of only self care) and was referred to Mount Vernon. But I do know they say it's hard to have new patients and want to discharge me for that reason!
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A quick search of MLD UK shows that you have one near Royston. Google Kate John MLD . Good luck.
No, I don't know any in Essex or Herts. I found the Lymphoedema clinic at St George's Hospital, Tooting, South London through the LSN and asked to be referred to them - GP referral OK as a start, but they do require a Consultant referral letter. They are excellent, with Prof. Mortimer as the main doctor, but also Dr. k. Gordon - she is excellent - I live in Essex, but found it was worth going to the experts, even though it is quite a journey for me. Getting the right treatment and advice is worth a great deal and has changed things for me enormously. I wish you all the best.
I believe that you could ask to be referred to the clinic at Mount Vernon in London Borough of Hillingdon...it is just cross the border. But i think there will be some criteria you have to meet to be accepted. Worth a try though. Good luck.
There is a Lymphoedma clinic in Hatfield but it takes secondary cases only. I have primary lymphoedema and visit ARTHUR RANK HOUSE in Cambridge and have done for many years. Good clinic lovely nurses.
I had the same problems (poor you) but eventually got my MEP in Brussels to sort things out. He was brilliant - details on after-cancer.info/category/...
can Good Luck!
Hi Mandy - you need to find out which clinical commissioning Group that you come under - just google your address and CCG and you should be able to find out. If you come under East and North Herts CCG then if your lymphoedema is not as a result of cancer then your CCG commission services at Mount Vernon although it may mean a bot of a wait. If you come under Herts Valley and your lymphoedemais secondary then you need to ask your GP to ask for an individual funding request - it may take time but should mean you are able to access treatment - even if it is in the private sector. Please note they will not usually fund MLD but will fund assessment and CDT.
I am sorry to hear that it is such a complex procedure to find a suitable clinic for assessment and treatment in your part of the world.
I live in Biggleswade and go to my local hospice at moggerhanger for my treatment
You're needing treatment during a bad time as everyone is focused on election. So have you tried your MEP? Details on how to about it on
after-cancer.info/category/...
My MEP wa miles better than my MP, and got me £2,000 worth of private treatment. It's worth an email - good luck!