I've had arm lymphoedema following a mastectomy, for 2 years now. It was diagnosed later rather than sooner so had chance to get a good hold, despite my protestations. Once it was diagnosed I was put in touch with a Lymphoedema Nurse Specialist and we've worked together for the past 2 years trying to 'find the right compression sleeve' that will 'work for me'. Sadly, so far, none have. My arm seems to have hit a plateau about 18months ago and has not decreased in size at all since then no matter which sleeves we try and how long each day I persevere with them. I continue to exercise the arm and I moisturise regularly every day. Nothing seems to 'work' to decrease its size. Also, a problem that really gets me down is that whatever sleeve I wear (and I've had different combinations of sleeves, gauntlets and seperates) I always end up with a swollen hand. My hand is always of an increased size when I remove the sleeve compared with before I put it on. I've tried wearing it for ten hours or more each day, down to just 2 hours each day but nothing works. The hand is always swollen on removal. Also, its my hand hand and arm that are lymphoedemic and I'm right-handed - which can make life quite difficult at times. Does anyone reading this have any ideas about how ot help with the hand-swelling, or have they experienced the same thing at all? Any advice or suggestions greatly appreciated.
Swollen hand: I've had arm lymphoedema following a... - LSN
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