I've had arm lymphoedema following a mastectomy, for 2 years now. It was diagnosed later rather than sooner so had chance to get a good hold, despite my protestations. Once it was diagnosed I was put in touch with a Lymphoedema Nurse Specialist and we've worked together for the past 2 years trying to 'find the right compression sleeve' that will 'work for me'. Sadly, so far, none have. My arm seems to have hit a plateau about 18months ago and has not decreased in size at all since then no matter which sleeves we try and how long each day I persevere with them. I continue to exercise the arm and I moisturise regularly every day. Nothing seems to 'work' to decrease its size. Also, a problem that really gets me down is that whatever sleeve I wear (and I've had different combinations of sleeves, gauntlets and seperates) I always end up with a swollen hand. My hand is always of an increased size when I remove the sleeve compared with before I put it on. I've tried wearing it for ten hours or more each day, down to just 2 hours each day but nothing works. The hand is always swollen on removal. Also, its my hand hand and arm that are lymphoedemic and I'm right-handed - which can make life quite difficult at times. Does anyone reading this have any ideas about how ot help with the hand-swelling, or have they experienced the same thing at all? Any advice or suggestions greatly appreciated.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.