Hello everyone. I've read through most of this forum. I'm recovering from long term lyme disease and what a lot of the forum members talk about i see similarities. Initially, doctors couldn't give me a diagnosis. I eventually figured it out myself. The most important thing to do if you want to rule lyme out is you have to find a good lyme literate doctor. A good resource to locate one is ILADS. The International Lyme & Associated Diseases Society. Your regular doctor can't help you. All they do is follow the crappy CDC guidelines. Lyme is called the great imitator. It mimics many other afflictions and has a very long list of symptoms. There is probably no 2 lyme sufferers the same as far as symptoms go. The lucky ones saw a tick had a bullseye rash and it hits hard fast. Their regular doc gives them the doxycycline regimen and they are good as new and never look back. The problem is that for some, the getting sick process is a slow drawn out process where you never saw a tick or had the rash. It could be years before you get to the debilitated stage.
Do a search regarding chronic/long term lyme disease. There is SO much info out there. Most lyme literate doctors will initially spend about an hour with you. This 1st visit will include drawing blood and most LL docs send the blood to a lab in Palo alto CA. called IGeneX. The best and most thorough sophisticated testing. Not the flawed tests run by your local quest. Check out dr bill rawls vital plan also.
Good luck
