Not again

[Dorsey]

Think my anxiety is out of control. These symptoms are so overwellming. Why do they not just go away and stay away. Iget these strange sensations down my back and then legs feel funny all day. If it's not one thing it's another just over it all. I feel for all of you that suffer like this. Hope most of you are having a good day.

[Elfje]

Same here

Again

I get really angry now

And frustrated

[Dorsey in reply to Elfje]

Yes me too when i feel s o bad and no one understands. I've tried sdo hard but still i suffer hate the strange legs and burning back drives me crazy andc makes me think i have a disease that doctors are missing.

[MomLeslieM]

Oh Dorsey, Im so sorry you feel so bad Do you know if there's anything specific that made you feel more anxious again? What are you trying as coping strategies??

[Dorsey in reply to MomLeslieM]

Just keep trying to do things but very lone ly whete i live. Its not easy.

[Funkyfaerie]

I get the exact same thing Dorsey, I have done for the past 2 years and I am still here.....what our minds and bodies can do to us is amazing. I get cross with it now and try to ignore it... It is making a difference. xx

[Dorsey in reply to Funkyfaerie]

Me too been over 2 years now my so n has cancer even worse.

[Dorsey in reply to Funkyfaerie]

Ehat are your worst symptoms because i always think it's something bad.

[Miniwheats in reply to Dorsey]

Dorsey, so sorry you're feeling this way. Everybody's symptoms are different although there seems to be more common ones like racing heart, shortness of breath, dizziness, derealization. But then there are really weird ones like night tremors upon waking (which I have) and tons of others I have personally experienced and finally went away with CBT. The other weird one I had was the feeling like I was walking on a trampoline! The night tremors are being stubborn and haven't gone away yet but I try not to pay attention to them. I truly believe that the symptoms we experience are the ones we are fearing the most because in our state of hypervigilance we are picking out every bodily sensation that confirms our worst fears (ie whatever 'working diagnosis' we have in our mind and whatever symptoms are associated with it), and then then they become amplified to the point that they feel stronger and more frequent. The body is very noisey at baseline and we typically don't pay attention until we're scared about a disease and then we notice EVERYTHING 🙄

[Dorsey in reply to Miniwheats]

Very true i do that focussed on bowel cancer for months then had tests all good. Now i think lung cancer cos back burfnss at times legs feel funny on and off all day. I know i have to stop doing this as it just makes things worse. And thank you for your reply most appreciated.

[Funkyfaerie in reply to Dorsey]

Hi Dorsey,

Not sure about your replies because of typos! They happen to the best of us especially with phones!

I just wanted to say that I do still suffer, but I have now had enough, all these strange feelings I get have not killed me, and I have to say if I get strong about one symptom, I will then get a different one that scares me. I still have the back and leg thing that you describe. But my main one at the moment us muscle tension in my neck and shoulders, that will instantly make my tummy feel weird and I feel sick. I have to try and stop and work it out....that I am tense, that makes my muscles hurt and that UN turn freaks me out, that upsets my tummy and makes me feel sick....it makes sense to me, but doesn't stop me being scared....and so, so tired of it.

I have had so many symptoms I have baffled the doctors, I have had loads of tests, all negative.

The way I am now , I attribute to 10 years of working away from home, lack of sleep, bad nutrition. Burn out, or old fashioned nervous breakdown!

I am just telling myself now that I cannot do this anymore, I have to get strong myself because no one can help me. It's ruined my life for too long, my life has just become an existence.

I can't do it anymore, aU have to try and get strong, and because I have managed to change my mind set, by talking to myself really....it us slowly working for me......I hope you can get strong too Dorsey, because I know how miserable it us and I feel for you. xx

[Dorsey in reply to Funkyfaerie]

Yes i totally agree i find myself focusing on all these symptoms and they just get worse. From the moment i wake up till i go to bed even then they still wake me up in the night. I hate feeling like this. Yes it's like existing not living.

[Funkyfaerie in reply to Dorsey]

Are you in the UK?

[Dorsey in reply to Funkyfaerie]

No Australia

[Funkyfaerie in reply to Dorsey]

Gosh, lucky you. At least you have sunshine to make you feel happier. Here in the dreary grey and rainy UK, doesn't help, I am longing for the spring, getting out in the garden makes me feel better.

I had a funny turns with my back pain and stomach last night , out of the blue....it brings me down straight away and the rest of the evening was full of worry....just like the start of a new day today, in case it happens again. I wish I had a switch off button for my ever thinking brain!

I was hoping we could meet up, but it's a bit of a long drive! 😊 xx

[Dorsey in reply to Funkyfaerie]

I'm originally from England lol. Yes me back asnd leg problems too so over it all makes me worry then i feel worse.X

[Dorsey in reply to Dorsey]

And stomache

[Hidden]

I think the symptoms just make us feel 10 times worse! I’ve been getting twitches in my legs (some in arms too) for the last 2-3 months and I’m scared is a neurological disease.

[Dorsey in reply to Hidden]

Yes Karen i get twitches too nut the burning pain in back and stomache scates the crap out of me. I never have one good day along eith legs t hat tingle and burn wish it would all ho away doctors just don't seem to listen. Over it all.

[Hidden in reply to Dorsey]

The second I open my eyes in the morning (or in the night) I assess whether they’re still there and if they’re worse/better. My upper thighs have been aching most of the day, then the last week or two I kept worrying that my upper right arm felt weaker. It’s exhausting! I’m seeing dr again on the 31st.

[Dorsey in reply to Hidden]

Good luck i think i have just about given up. Never any answers.

[Hidden in reply to Dorsey]

Thanks. My dr said if I still have symptoms when I next see him he’ll refer me to the neurologist for an EMG to try and reassure me as he thinks it’s stress and anxiety.

[Dorsey in reply to Hidden]

Yes it probably is let us know how you go and good luck.

[Hidden in reply to Dorsey]

Thank you. Good luck to you too, I hope you get some peace from your symptoms.