I'm new to the JIA forum but have been a member of Health Unlocked for quite a long time now.
Our gorgeous little granddaughter who will be 3 this Saturday, 9 February, was diagnosed last year with JIA (Juvenile Idiopathic Arthritis) and the type she has is Uveitis so she has inflammation in her eyes. In her left eye her vision is particularly affected and her lens was stuck to the surrounding tissue. She has been on steroid eye drops and has to have regular eye tests until she's a teenager.
We were hoping that the eye drops would be enough but unfortunately they are not and she was put on Methotrexate about 7 weeks ago; she has to forgo the medication tomorrow as she has been spiking a temperature.
Her mummy and daddy originally noticed her limping so my daughter took her to the doctors, she was then referred after going back as it hadn't cleared up to a Paediatrician. The Paediatrician was convinced it was JIA but the knee seemed to clear up but then her thumb started hurting. It was in May last year that the hospital called and said they thought it was JIA.
After many Xrays/Ultrasound and blood tests she was finally diagnosed in around October time with the Uveitis, we were told that if she didn't have the drops then she would go blind.
My daughter and her husband were really worried last night as they didn't know what to do; her temperature was spiking at 40, fortunately it did come down with Calpol. My daughter managed to get hold of the nurse that has been looking after my granddaughter and advised not to take her out today and not to give her the Methotrexate tomorrow night so that was a relief.
My question here is do any of you have children/grandchildren that have this form of JIA? If so, how do you deal with it?
Thanking you all in advance.