What symptoms do adults with JIA experience? - JIA Parents

JIA Parents

What symptoms do adults with JIA experience?

Tree6
Tree6

Hi I'm new to this forum and hoping there may be some other adults with JIA here. I'm now in my 40s and was diagnosed with JIA aged 18 months, I also have uveitis. Although my JIA is mainly in remission (no acute flare ups for the last few years though my eye problems are still active), I have a lot of other aches and pains and stiffness in my body on a daily basis and no-one seems to be able to tell me if that is connected with my JIA or just getting older, or poor posture, sitting down too much, or .... Do others have a similar experience? Have you found a way to improve the situation? Thanks!

6 Replies
oldestnewest

I am sorry to hear this. What treatment did you take after being diagnosted at 18 months old? Are you still taking treatment?

Tree6
Tree6 in reply to Xdiana

No idea what I took at the time - but it was 40 years ago so many of the options today weren't around then. For the last 15-20 years I've been on sulfasalzine and hydroxycloroquine.

Hello.

May I suggest you join the NRAS health unlocked forum as well, as I know there are other adults there with JIA.

I have RA and my daughter has JIA which is why I’m a member of both forums. The NRAS one is much more active than this one, and I know you will be welcomed by everyone.

Best wishes, I hope you find some answers.

Tree6
Tree6 in reply to bpeal1

Thank you, I will try that

Hi there. I am new to this forum as well. I have adult JIA, also disagnosed at 18 months. I am now 35 and still get flare ups. I was also diagnosed with CFS a couple of years ago which has improved since I had my daughter (who also has recently been diagnosed with JIA) but it still makes me tired, achy muscles etc. I do yoga every morning and I drink fresh apple and celery juice every morning. Celery has strong anti inflammatory properties and I find it really helps my joints and makes me sleep a lot better too.

The yoga helps my while body to be honest. What type of JIA do you have?

I'm not 100% sure to be honest, it is pauciarticular (four or less joints) and they used to call it Stills Disease, as I have uvietis in my eyes as well. Now they just seem to call it JIA. It always seems strange being an adult with a juvenile disease! I will definitely try the celery and yoga - I have been trying to get an exercise regime going but I find it a struggle to keep with it.

You may also like...