A Touching Story

[GretaB]

This is a website dedicated to a 7 year old girl who lost her life to ITP. Family and friends are trying to raise awareness of ITP to the general public.

facebook.com/l.php?u=http%3...

[GretaB]

sorry the above link does not work, try this one...

caseyscause.org

[AnthonyHeard Administrator ITP Support Association]

Thank you for sharing this link Greta. I have posted a link to it on the ITP Support Association Facebook page and also on the TWITTER group. I never cease to be amazed by the remarkable work that people are doing for this cause. I cannot imagine the heartache that this family must have gone through but even in such terrible adversity they have fought back by working to raise awareness for this mystery condition.

[GretaB]

Thanks Anthony,

This group of family and friends are doing a lot to raise awareness of ITP. We all need to spread the word in whatever way we can. It is so sad to read about a seven year old dying from ITP and I admire her family for what they are doing. I have renewed my vow to do all I can!!

I think my book "Heartaches and Miracles" has made a few non-ITPers aware of what we go through but there is so much more I'd like to do. We may put on a motorcycle ride to raise funds for ITP research next September if we can get some sponsors. If that is successful, we have more ideas to 'spread the word'