I have a genetic condition called ehler danlos hypermobile type,where joints are loose,bruise easy,lots of pain fatigue,its a synndrome so every bodily aspect can be affected %50 chance of children having it. my youngest has it ,especially flatfooted,proplemswith her neck,back legs,tummy probs,hearing ,bruising and bleeding,fatigue and pain.she has ice pads and takes a low dose of cocodamol she is 13. recently started periods,heavy,the bruising got terrible,looked like she had been in a car crash.low platelet 47. now under birmingham childrens hospital. testdfor allsorts negative. but even when her platelet count goes up to say 100 she still gets all the bruising,so it is not low platelets causing this,she has to go back beginning of october,I think she needs to see a different type of doctor not a haemotologist help any ideas gratefully recieved thankyou.
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