Feeling chilly, even in warm weather?

[itplassne]

Does anyone else with ITP feel the cold, especially cold hands and feet (and cold knees!) despite the weather being quite warm? I'd be grateful to know whether it's a common phenomenon in ITP, or whether it's just me 🙄

[Sewandstitch]

I have been feeling a bit chilly but not noticing it in hands and feet. It’s when I go outside in lighter clothes, and bare legs especially

[itplassne in reply to Sewandstitch]

Thank-you for replying. I always seem to need an extra layer (often plus gloves) compared to my husband!

[Anthonyh7]

Hello itplassne...

Yes I am someone who always seems to feel colder than everyone else, even when the weather is warm. I also always feel tired/fatigued when my platelets are low or dropping which seems to be quite a common trait with us ITP folk.

I conducted a poll here on Healthunlocked some years ago about the very subject of feeling cold and thought you may be interested to see details of the responses that I got.

The following link will take you to the poll and the various comments...

healthunlocked.com/itpsuppo...

[itplassne in reply to Anthonyh7]

Thank-you for replying, and for the link to your survey and people's comments. It's comforting that I'm not alone in feeling the cold with ITP. 🙂

[stemie]

I understand that hypothyroidism (another autoimmune disease) is often associated with ITP, as it does with me. Cold extremities are a symptom of hypothyroidism.

I also suffer from Raynaud;s and cold agglutinin disease so I really feel the cold!

[itplassne in reply to stemie]

Thank-you for your reply. It sounds as though I have nothing to complain about, in comparison to your problems. I hope you find some treatment to help you.

[sharroN42]

I am always much chillier than friends, especially now, visiting at a distance in back yards. And I always wear socks to bed. Cold hands (warm heart), cold feet.

Thanks everyone for this enlightening thread

Frankie

[itplassne in reply to sharroN42]

Thank-you for replying. I find I need bedsocks almost all year, and have recently started wearing wrist warmers at night too. Hooray for the inventor of the hot water bottle (to combat cold knees)!

[sharroN42]

I wear wrist braces. I hadn’t thought but that obviously keeps my wrists warm. Bad knews about the knees. I can’t wait.